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My Great Strides Story

Ashley Adkins
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Ashley Adkins

Hello Everyone, Bentleys mom here. Bentley has been has been a CF fighter since three weeks old. Here we are at TWELVE and thriving! Bentley enjoys playing video games and being with his friends! He is an AMAZING defensive player in the three sports he plays year round, basketball, baseball, and football! Bentley has been on Trikafta for a few years now and he’s doing great on it! Weight gain and Pfts have been incredible! Bentleys cystic fibrosis journey has seriously been a blessing.. because we know it can be a lot worse. We want to thank you and everyone for donating, sharing, and walking with us today to be able to be as healthy as are and getting us closer to C standing for. CURE. 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
 

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.