Doin It For Drew
I first read the words "cystic fibrosis" in an email my brother (specifically my brother Martin) on March 29, 2010. It was an email sent when his son, my nephew was 2 weeks old.
I walked in Great Strides in Honolulu that May raising money for cystic fibrosis, without really knowing what i was participating in. But soon therafter, i began a crash course in learning about CF. Learning that at that time, the median lifespan for a person born with CF was 36-38. My age at the time. Learning there was no cure.
Over the past 16 years, I have learned so much about CF. And at the same time, I have learned more about what the CF Foundation has accomplished, and what their mission is. To find a cure for every person with CF. To that end, I do whatever I can. Raising money, raising awareness. Not only for my nephew Drew, but for the hundreds of families I have gotten to know who are and have been impacted by this disease.
Please consider joining my team. Raise money and do the 10k, or the marathon. Or make a donation towards our efforts.
$16 in honor of my nephew's age
$52 - my age at the time of the race
$65 - the median age of a person born with CF today, who can take a modulator drug
$45 - the median age of a person born with CF today, who can't take a modulator drug. About 10% of the CF population.
I often speak of Ohana. The Hawaiian word for family. And in the word of Lilo from the movie Lilo & Stitch, "Ohana means family. And family means no one gets left behind. Or forgotten." I will continue to ask for donations until.we have a cure for cystic fibrosis.
We invite you to take part in Breathe Team by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By running (or walking) with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
I walked in Great Strides in Honolulu that May raising money for cystic fibrosis, without really knowing what i was participating in. But soon therafter, i began a crash course in learning about CF. Learning that at that time, the median lifespan for a person born with CF was 36-38. My age at the time. Learning there was no cure.
Over the past 16 years, I have learned so much about CF. And at the same time, I have learned more about what the CF Foundation has accomplished, and what their mission is. To find a cure for every person with CF. To that end, I do whatever I can. Raising money, raising awareness. Not only for my nephew Drew, but for the hundreds of families I have gotten to know who are and have been impacted by this disease.
Please consider joining my team. Raise money and do the 10k, or the marathon. Or make a donation towards our efforts.
$16 in honor of my nephew's age
$52 - my age at the time of the race
$65 - the median age of a person born with CF today, who can take a modulator drug
$45 - the median age of a person born with CF today, who can't take a modulator drug. About 10% of the CF population.
I often speak of Ohana. The Hawaiian word for family. And in the word of Lilo from the movie Lilo & Stitch, "Ohana means family. And family means no one gets left behind. Or forgotten." I will continue to ask for donations until.we have a cure for cystic fibrosis.
We invite you to take part in Breathe Team by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By running (or walking) with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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