The cystic fibrosis foundation is so important to us because it was founded by parents like us.

Parents like us that were told their child had a fatal disease.

Parents like us that refused to give up hope.

It's because of those families and their hard work that our child has a chance to live long enough to achieve his dreams.

If you are a parent of a child with a life threatening or shortening disease one thing is you never give up hope, hope that in their lifetime a cure will be found.

Those founding parents didn't get to see a cure happen in their children's lifetime.

Little did they know at that time that their hard work, their unwavering hope would start a chain reaction and nearly 70 years later so many breakthroughs would come extending the once average life expectancy of just a few years to now where many live nearly normal life spans. 80% of people with CF are able to take a miracle drug a gene modulator that is the closest thing to a cure there is so far, we are hoping our fundraising will eventually help the 20% like our son Lyric.

Many people with CF still dont have the opportunity to live longer healthier lives which is why research and development of more medications for all the different mutations is futile.

Lyric carries two different mutations which makes his a more complex case, where the finding and research is very important to develop treatments for both of his variants.

Now I'm the parent carrying the hope and the belief that we are close enough to find a cure in Lyric's lifetime.

If not then my hard work now will help a family like ours in the future, so that when they get the news that their child has CF it is followed up with, and we have a cure for that!

#walkwithlyric