Our sweet girl Laine was diagnosed with CF in utero via amniocentesis while I was in my third trimester of pregnancy.  We spent the months leading up to her birth scared and anxious for what was to come. Fear unfortunately stole so much excitement from us. She was born with meconium ileus which is common in babies with CF and basically means she had a blockage in her intestine. Laine underwent surgery at just 2 days old and spent 75 days in the NICU. We were so nervous about how life would look for her, if we had all of the tools or even knowledge to care for her. There were so many unknowns, we were very scared but knew we’d love her and give her the best life possible no matter what. At 13 months, Laine is the happiest little girl. She has gained weight without issue, she has met every milestone. Every doctor talks about how she has surpassed their expectations and to say we are proud is an understatement. We are so thankful for every medical professional that cared for our girl at John’s Hopkins, for modern medicine, our loving and supportive family, and for God watching over us. The CF Foundation continues to raise money to help find a cure for this disease. Although Laine is doing so well, there are MANY living with CF that aren’t. 

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this

disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

By donating to the CF foundation, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.