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My Great Strides Story

Rose Seibel

Fundraising for Madison Great Strides

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Rose Seibel

Dear Friends,

 

I hope you are doing well. I'm once again participating in the annual Great Strides Walk for the Cystic Fibrosis Foundation Fundraiser on June 7, 2025, to help add tomorrows.   I would love for you to help support my cause and make a donation to the CFF in Vida’s & Soren’s names.  

 

As you are probably aware, my niece Vida and nephew Soren were born with Cystic Fibrosis (an inherited chronic disease that affects their lungs). Both continue to doctor at the American Family Children’s Hospital in Madison and have regular checkups. There, they receive liver ultrasounds, chest x-rays, EKGs, throat cultures and blood draws on a regular basis. Both Vida and Soren have been able to take Trikafta, a “miracle drug” which has greatly extended their life expectancy.  Trikafta is the first drug of its kind to treat the underlying cause of CF and not just the symptoms. 

 

Vida is 14 and enjoys playing volleyball and softball as well as reading and going out to eat at Chipotle or Mac’s. Soren is 9 and plays football, basketball, and baseball. His interests also include his dog Reggie and anything to do with WWII.  

 

Throughout the last 14 years, team “Chute for a Cure” has raised more than $100,000 for the CFF!!  We are still working toward, praying for, and believing that a cure will be found. All donations to the Cystic Fibrosis Foundation will help add tomorrows to the lives of adults and children living with this disease. We thank you so much for your love, prayers, kind words, and support.

MAR
24

Vida & Soren CF Video 2025

Soren, Cohen & Vida

Vida on the court "Chuting for a Cure"

Soren

Vida & Auntie Rose

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$270
raised of $1,000 goal
 

Achievements

Member of

Team Chute for a Cure

$370
$2,000

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.