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My Great Strides Story
Rick Geremia
On February 14th, 2024 my daughter Brittney gave birth to Landon Daniel Donnelly, my first grandchild! I was elated, but I have to admit, I was very scared! Right from the beginning Landon was treated by a “CF Team” at Yale Hospital, led by Dr. Egan, this team consists of a dietician, physical therapist, social worker, nurse practitioner, respiratory therapist, and pharmacist. I had the privilege of joining my daughter on two of his monthly appointments. Watching this fantastic team work with Landon was amazing! Their expertise, diligence, and genuine empathy reassured our family during this challenge.
As Landon is now approaching his first birthday, he is an extremely happy, healthy, and active boy. We have received medicine, formula, and his vest comes in this week. We were excited to learn that Landon was recently chosen as an Ambassador for the CT CF Chapter. My family cannot thank the CF Foundation enough for the support they have provided us!
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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