Trey's Tribe
Sign up, lace up and join us to beat CF!
Trey’s Tribe IS BACK in 2025 to show support and raise critical funds for the Cystic Fibrosis Foundation. Great Strides is a fun event that provides a fantastic opportunity for family and friends to come together to make a difference in the lives of people with CF. Join our team and help us get one step closer to a cure for cystic fibrosis!
What is CF?
Cystic fibrosis (or CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride — a component of salt — to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky.
And who is this Trey guy, anyway?
Trey is a loving, energetic, funny and very handsome six year old. He loves spending most of his time outside, playing with friends and family, and is an avid swimmer, karate student and baseball player.
We’ve known Trey has CF since before he was even born – genetics are fascinating. So is CF. It’s also a rollercoaster. Treatments, medications, and therapies are continually changing. And lately they’ve been changing for the better and less frequent! Trey has been fortunate enough to be eligible to take a prescription drug called Kalydeco, a genetic modulator that targets the underlying CFTR protein.
We’re asking for your support!
The CF Foundation funded the research that led to the discovery of genetic modulators like Kalydeco. But we aren’t stopping until there is a cure. A cure for Trey, and so many more. Join our team, buy some swag and spread the word!
Please note - team shirts are available here, please be sure to get in orders by 8/19 to ensure they arrive on time!
Trey’s Tribe IS BACK in 2025 to show support and raise critical funds for the Cystic Fibrosis Foundation. Great Strides is a fun event that provides a fantastic opportunity for family and friends to come together to make a difference in the lives of people with CF. Join our team and help us get one step closer to a cure for cystic fibrosis!
What is CF?
Cystic fibrosis (or CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride — a component of salt — to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky.
And who is this Trey guy, anyway?
Trey is a loving, energetic, funny and very handsome six year old. He loves spending most of his time outside, playing with friends and family, and is an avid swimmer, karate student and baseball player.
We’ve known Trey has CF since before he was even born – genetics are fascinating. So is CF. It’s also a rollercoaster. Treatments, medications, and therapies are continually changing. And lately they’ve been changing for the better and less frequent! Trey has been fortunate enough to be eligible to take a prescription drug called Kalydeco, a genetic modulator that targets the underlying CFTR protein.
We’re asking for your support!
The CF Foundation funded the research that led to the discovery of genetic modulators like Kalydeco. But we aren’t stopping until there is a cure. A cure for Trey, and so many more. Join our team, buy some swag and spread the word!
Please note - team shirts are available here, please be sure to get in orders by 8/19 to ensure they arrive on time!
Comments