My Great Strides Story
Fundraising for Mid-Willamette Great Strides
Grace Bergen
Our Journey with Cystic Fibrosis: A Story of Hope and Resilience
Six years ago, our lives changed when our son, Benny, was diagnosed with cystic fibrosis. As first-time parents, we faced overwhelming challenges, especially caring for a premature baby in the NICU. The diagnosis felt daunting.
In those early days, we learned to take things one day at a time. Every small victory, like Benny gaining weight, was a reason to celebrate. We discovered a supportive community through the Cystic Fibrosis Foundation, which provided resources and connected us with specialists.
As we adapted to our new routine, our family grew stronger. Benny's laughter and curiosity reminded us to cherish life. We focused on creating joyful memories, from family picnics to vacations.
Today, Benny is a thriving almost six-year-old with a zest for life. Our family advocates for cystic fibrosis awareness, grateful for the community and support that has guided us. Our journey has taught us resilience, the importance of love, and the belief that together, we can overcome anything.
Together, we fight for a cure for Benny and the thousands that have been diagnosed.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
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