Bryan Weil
Hello Family & Friends!
This past year has brought incredible changes to Claire’s health and daily routine, along with some once-in-a-lifetime experiences.
In January, Claire received her long-awaited wish from The Make-A-Wish Foundation—a trip to Disney World! The experience was truly magical for her, and we are so grateful to the wonderful volunteers who make children living with life-altering diseases feel special and cherished.
In early 2024, after nearly four years of taking the breakthrough modulating medication Trikafta, we discovered some significant improvements in Claire’s CF symptoms. We are thrilled to share that Claire no longer needs to take pancreatic enzymes with her meals! Additionally, her lung function has been so strong that we’ve been able to reduce her daily breathing treatments from twice per day to just once per day!
These changes to Claire’s daily routine are nothing short of life-changing. They are milestones that Bryan and I could only dream of not long ago. We are deeply grateful to be experiencing these positive changes, and it’s all because of YOU. Your generous donations have helped fund the research that led to the development of these medications. Without contributions to the CF Foundation, Claire wouldn’t be in this fortunate position today.
While we are excited to share this good news, there is still a sense of anxiety and fear. Claire’s current state of health is entirely dependent on the medication she takes twice a day. She is NOT cured. The disease still exists within her, and there is no guarantee that these medications will keep her CF symptoms in check forever. There is still so much work to be done to develop more modulating medications that can benefit every person with CF—and, of course, to ultimately find a cure.
We are so grateful for your ongoing support, which brings us one step closer to that cure. Together, we can continue to make a difference in the lives of those living with CF.
Thank you for being part of Claire’s journey and for helping us move closer to a brighter future.
With heartfelt gratitude,
Meghann, Bryan, Claire & Ava
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
This past year has brought incredible changes to Claire’s health and daily routine, along with some once-in-a-lifetime experiences.
In January, Claire received her long-awaited wish from The Make-A-Wish Foundation—a trip to Disney World! The experience was truly magical for her, and we are so grateful to the wonderful volunteers who make children living with life-altering diseases feel special and cherished.
In early 2024, after nearly four years of taking the breakthrough modulating medication Trikafta, we discovered some significant improvements in Claire’s CF symptoms. We are thrilled to share that Claire no longer needs to take pancreatic enzymes with her meals! Additionally, her lung function has been so strong that we’ve been able to reduce her daily breathing treatments from twice per day to just once per day!
These changes to Claire’s daily routine are nothing short of life-changing. They are milestones that Bryan and I could only dream of not long ago. We are deeply grateful to be experiencing these positive changes, and it’s all because of YOU. Your generous donations have helped fund the research that led to the development of these medications. Without contributions to the CF Foundation, Claire wouldn’t be in this fortunate position today.
While we are excited to share this good news, there is still a sense of anxiety and fear. Claire’s current state of health is entirely dependent on the medication she takes twice a day. She is NOT cured. The disease still exists within her, and there is no guarantee that these medications will keep her CF symptoms in check forever. There is still so much work to be done to develop more modulating medications that can benefit every person with CF—and, of course, to ultimately find a cure.
We are so grateful for your ongoing support, which brings us one step closer to that cure. Together, we can continue to make a difference in the lives of those living with CF.
Thank you for being part of Claire’s journey and for helping us move closer to a brighter future.
With heartfelt gratitude,
Meghann, Bryan, Claire & Ava
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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