My Great Strides Story
Jamie Fader
Fundraising for Minneapolis Great Strides
Jamie Fader
My name is Quinn Fader.
At 6 days old my pediatrician called my parents to tell them their little girl most likely has an incurable disease, Cystic Fibrosis. My parents were devastated. For three days they wondered- what went wrong? How did this happen? A genetic disease and no one was known to have this on either side of the family?! They went to U of M and met my care team that I was assigned to, learned about this disease and what needed to be done in order to fight this battle! Leaving the clinic my parents were given hope.
This disease is not like it used to be. In the past, Cystic Fibrosis was a death sentence for children and they more than likely would not see adulthood. Now there are treatments that give CFers the opportunity to live a more "normal" life. I'm fortunate to live in these times!
I just turned one year old on March 15th! I got my vest at 10 months old and am fortunate enough to qualify for a modulator (pill) that will help correct the underlying cause of this disease. One downfall of this is that the modulators cost thousands to hundreds of thousands of dollars a year and it isn't a cure. More importantly, not all CFers can take this drug due to their genetic mutation type. We need a cure! I deserve to live a long great life without having to spend hours a day doing treatments. My ask to you is to please donate to this amazing foundation so we can help change the meaning of CF from Cystic Fibrosis to Cure Found.
This disease is not like it used to be. In the past, Cystic Fibrosis was a death sentence for children and they more than likely would not see adulthood. Now there are treatments that give CFers the opportunity to live a more "normal" life. I'm fortunate to live in these times!
I just turned one year old on March 15th! I got my vest at 10 months old and am fortunate enough to qualify for a modulator (pill) that will help correct the underlying cause of this disease. One downfall of this is that the modulators cost thousands to hundreds of thousands of dollars a year and it isn't a cure. More importantly, not all CFers can take this drug due to their genetic mutation type. We need a cure! I deserve to live a long great life without having to spend hours a day doing treatments. My ask to you is to please donate to this amazing foundation so we can help change the meaning of CF from Cystic Fibrosis to Cure Found.
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