Walk with our team to Cure Cystic Fibrosis
Caelynn’s Crusaders
We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!
We walk for Caelynn, who was diagnosed with cystic fibrosis in utero. Caelynn started off life with surgery right from day 1! She’s a fighter in all senses of the word.
Caelynn loves soccer, gymnastics, reading, making art, and hanging out with her friends. She is responsible and open about CF- every year since first grade she has educated her classmates about cystic fibrosis and most recently served as a guest speaker (with the help of her parents) in a Princeton University class to show the patient/family perspective on the disease.
While our family has a lot more “behind the scenes” stuff to do every day than most other people, we find many joyful moments together and look forward to many more. Walking with us or donating to Great Strides is a way to contribute our family’s future together. With your support, we know that the “CF roller coaster” will not keep us from enjoying our time on the “ups” so we can persevere through the “downs”.
To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us!
Caelynn is an amazing 9 year old who loves biking, soccer, gymnastics, and art! Caelynn’s favorite artist is Frida Kahlo because she connects with her time spent doing art while in bed when she was ill. Caelynn also has Cystic Fibrosis. She takes pills before each meal to eat, does her breathing treatments twice a day (everyday), along with other medications. Caelynn is a great advocate for herself and has become very confident in educating others about CF in the past year. I am so proud of who Caelynn is becoming and thankful for our amazing friends and family who join us as Caelynn’s Crusaders!
Comments