Aspyn's Great Strides Story
Hayley Lee
Hayley Lee
On August 14, 2022, Austin and I welcomed our second child, Aspyn. Aspyn was preemie, born at 34 weeks 3 days. A few days prior to her arrival, I went into our local emergency room for a kidney stone. During my CT scan, they found a large mass on Aspyn's stomach. We were sent to Ann Arbor to meet with a high-risk doctor, who confirmed the mass on her stomach was from a blockage in her bowels. She was going to require surgery upon delivery, so we decided it would be best for me to be induced at 38 weeks in Ann Arbor where they were best equipped to do her surgery. The Sunday after meeting with the team in Ann Arbor and scheduling the induction, our girl decided she was NOT waiting any longer to see the world. She broke my water very early in the morning; there was no way I would have been able to make it to Ann Arbor to deliver. We went to our local hospital and when we arrived, we discovered she was under distress, so she was delivered Emergency C-section in Alpena MI. From there she was transferred by life flight to Mott's Children's hospital to undergo surgery.
During her 79 days in the hospital, Aspyn underwent 2 GI surgeries, was diagnosed with Cystic Fibrosis (CF), extreme pancreatic insufficiency, and short gut as a result of her surgeries. There was quite a lot of her bowels that were too damaged for repair from the blockage and therefore, it had to be taken out. She was started on an intense breathing treatment regime, CREON for her pancreatic insufficiency, and a multi vitamin. People with CF struggle to absord vitamins A, D, E and K. So, they have a CF specific vitamin that they call "ADEK" to help with these vitamin deficiencies.
Shortly after Aspyn was released home, she was able to come off of most of her breathing treatments, she now only requires nebulized medications when she is sick, and she has continued to make huge progress. She has reached all of her developmental goals despite being preemie and having a lifelong illness. She has continued to show us just how strong she really is!
Aspyn is one of about 40,000 people in the United States that have Cystic Fibrosis. The CF foundation has made lots of advancements in improving the quality of life for CF patients. They work every day to get closer to finding a cure!
By supporting Aspyn and our fundraising goal, you will help make our dream of a cure a reality!
...
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
During her 79 days in the hospital, Aspyn underwent 2 GI surgeries, was diagnosed with Cystic Fibrosis (CF), extreme pancreatic insufficiency, and short gut as a result of her surgeries. There was quite a lot of her bowels that were too damaged for repair from the blockage and therefore, it had to be taken out. She was started on an intense breathing treatment regime, CREON for her pancreatic insufficiency, and a multi vitamin. People with CF struggle to absord vitamins A, D, E and K. So, they have a CF specific vitamin that they call "ADEK" to help with these vitamin deficiencies.
Shortly after Aspyn was released home, she was able to come off of most of her breathing treatments, she now only requires nebulized medications when she is sick, and she has continued to make huge progress. She has reached all of her developmental goals despite being preemie and having a lifelong illness. She has continued to show us just how strong she really is!
Aspyn is one of about 40,000 people in the United States that have Cystic Fibrosis. The CF foundation has made lots of advancements in improving the quality of life for CF patients. They work every day to get closer to finding a cure!
By supporting Aspyn and our fundraising goal, you will help make our dream of a cure a reality!
...
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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