P & B's Posse-Fighting for a Cure
P&B’s Posse
P&B’s Posse
Palmer's Story
Palmer made a very unexpected entrance via emergency c-section at 32 weeks, 2 days in February of 2022. Shortly after her birth, it was confirmed via the newborn screen that she had a diagnosis of cystic fibrosis.
Early on Palmer had quite the journey and fight against CF. She was born with meconium ileus and underwent 3 GI surgeries, which were complicated by NEC. She cultured pseudomonas at 3 weeks of life, began an extensive breathing treatment regimen, was diagnosed as pancreatic insufficient, began pancreatic enzymes, and transferred NICUs to attain specialty CF care. She had a 79 day hospital stay before discharging home.
Following her discharge, Palmer has maintained her health through the advances in CF care, including daily breathing treatments, enzymes and extra vitamin supplements, and most recently she began taking Trikafta.
However, even with advances, she had another battle with CF at 21 months when she was hospitalized because of gallstones/mucus build up that was blocking her bile ducts. She underwent laparoscopic surgery to remove her gallbladder. Thankfully, she has since recovered well.
Beckett's Story
Beckett was born full term in February of 2024. Prior to his birth, Beckett received a diagnosis of CF via amniocentesis. This was following spotting of an echogenic bowel at the anatomy scan, just as his sister had presented with 2 years prior. Following his anatomy scan, I was able to begin taking Trikafta while pregnant. Because of Trikafta, Beckett's bowel issues resolved in utero and he was born without complications.
Following his birth, Beckett was diagnosed as pancreatic insufficient and began taking enzymes, as well as, supplementing with sodium and a multivitamin. He also participates in daily breathing treatments.
Because the CF community has been so diligent in investing in research, such as Trikafta, Beckett's birth and early days have looked far different than what his sister endured. He is home and doing quite well, thankfully. We are smitten with our sweet boy.
P&B's Story
Although their journeys have been different, they both battle Cystic Fibrosis daily. Their days are filled with medicines, treatments, and nuisances related to CF. Not to mention the many doctors appointments, lab draws, and imaging. We are so thankful for all of the advancements but the fight against CF is not over. We have many hopes and dreams for Palmer and Beckett, with the ultimate dream being a cure for CF so they can live long, quality lives. However, that will only happen if we continue to invest in the CF foundation as they diligently work to find a cure for all.
Palmer made a very unexpected entrance via emergency c-section at 32 weeks, 2 days in February of 2022. Shortly after her birth, it was confirmed via the newborn screen that she had a diagnosis of cystic fibrosis.
Early on Palmer had quite the journey and fight against CF. She was born with meconium ileus and underwent 3 GI surgeries, which were complicated by NEC. She cultured pseudomonas at 3 weeks of life, began an extensive breathing treatment regimen, was diagnosed as pancreatic insufficient, began pancreatic enzymes, and transferred NICUs to attain specialty CF care. She had a 79 day hospital stay before discharging home.
Following her discharge, Palmer has maintained her health through the advances in CF care, including daily breathing treatments, enzymes and extra vitamin supplements, and most recently she began taking Trikafta.
However, even with advances, she had another battle with CF at 21 months when she was hospitalized because of gallstones/mucus build up that was blocking her bile ducts. She underwent laparoscopic surgery to remove her gallbladder. Thankfully, she has since recovered well.
Beckett's Story
Beckett was born full term in February of 2024. Prior to his birth, Beckett received a diagnosis of CF via amniocentesis. This was following spotting of an echogenic bowel at the anatomy scan, just as his sister had presented with 2 years prior. Following his anatomy scan, I was able to begin taking Trikafta while pregnant. Because of Trikafta, Beckett's bowel issues resolved in utero and he was born without complications.
Following his birth, Beckett was diagnosed as pancreatic insufficient and began taking enzymes, as well as, supplementing with sodium and a multivitamin. He also participates in daily breathing treatments.
Because the CF community has been so diligent in investing in research, such as Trikafta, Beckett's birth and early days have looked far different than what his sister endured. He is home and doing quite well, thankfully. We are smitten with our sweet boy.
P&B's Story
Although their journeys have been different, they both battle Cystic Fibrosis daily. Their days are filled with medicines, treatments, and nuisances related to CF. Not to mention the many doctors appointments, lab draws, and imaging. We are so thankful for all of the advancements but the fight against CF is not over. We have many hopes and dreams for Palmer and Beckett, with the ultimate dream being a cure for CF so they can live long, quality lives. However, that will only happen if we continue to invest in the CF foundation as they diligently work to find a cure for all.
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