Daniel was born on September 14, 2023. From the moment we first saw him, we knew he was going to be the light of our world. As first time parents you never know what to expect, but we didn’t realize our world would shortly get flipped upside down. About a week after Daniel was born, we got a call from the Cystic Fibrosis center in Morgantown claiming that Daniel had an abnormal newborn screening. 

What does that mean? It could be wrong, right? Is that why Daniel is losing so much weight? is that why he always has dirty diapers? A million thoughts ran through our head. Logan and I had only been parents for 1 week, and we thought we had failed our perfect little boy. Daniel had been diagnosed with Cystic Fibrosis. 

We did not. We left Morgantown as a stronger family, ready to embrace the CF world. We started with pancreatic enzymes, added in chest physiotherapy, and now thriving on Orkambi. While science has made miraculous strides in treatments and therapies for cystic fibrosis, no cure has yet to be found. 

Whether you know Daniel Coe, or not, I’m sure there is a CF story that will resonate with you. About 1,000 people are diagnosed with cystic fibrosis every year. Please take a moment to look through the stories on the Great Strides page, and if you are financially able, make a donation to the Cystic Fibrosis Foundation.