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My Great Strides Story

Sarah Butler

Fundraising for Morgantown Great Strides

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Sarah Butler

Most of you know my son, Skyler, was born with Cystic Fibrosis. He has been through so much already at only 14 years old, but with the research and new and upcoming medical treatments that the CF Foundation has been able to provide, his life has become somewhat easier to manage with this life long disease. Donating has been a huge blessing for many, including Skyler. If you cannot donate, feel free to share this post. Awareness is key.

There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
APR
29

surgery #2

Always in good spirits

surgery #1

Make-A-Wish Trip 2023

Make-A-Wish Trip 2023

MAR
22

Skyler’s Give Kids the World Star during his Make a Wish trip

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$533
raised of $2,000 goal
 

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Team Skyler

$558
$3,500

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.

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