Celebrations shouldn't be a countdown, but for many they are. According The Cystic Fibrosis Foundation, "There are close to 40,000 children and adults living with cystic fibrosis in the United States and an estimated 105,000 people have been diagnosed with CF across 94 countries." This genetic disease affects many vital organs including the lungs and pancreas and because it gets worse over time many people with Cystic Fibrosis never know how long they have left to celebrate. They will spend holidays, birthdays, even entire summers in the hospital because CF is preventing them from being able to live as many of us do.
The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.
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