Marc’s Trotters is excited for its Massachusetts and New York Teams to participate in this year’s Great Strides Walk! We’ve been putting in miles since I was diagnosed with Cystic Fibrosis in 2013.

I'm a healthy, energetic 12-year-old, and thanks to my supportive family, the NYU Cystic Fibrosis Center, and Trikafta, a CFTR modulator, I'm thriving. I'm a skilled swimmer, I like to play basketball, produces short films, and I'm a talented musician, playing piano and singing. I have 5 musicals and a dozen recitals under my belt!

Even with Trikafta, I still need to continue my twice-daily treatments (nebulizers and chest compression therapy), take pancreatic enzymes before I eat foods with fat and proteins, and see my CF team at least quarterly.

I  fully support the Great Strides Walk and the CF Foundation in our combined mission to cure Cystic Fibrosis. While progress, such as improved CFTR modulators and treatment options, have helped some CF fighters, like me, too many are still struggling with the effects of CF.

We are grateful for the progress that has been made, and my family will not stop until we achieve our ultimate goal, which is a cure. To achieve this goal, more research is essential, requiring a very substantial investment. Even after a cure is found, customized care will be needed for generations to treat long-lasting health problems, making continued donor support vital. Fundraising is critical to advance our mission, and now is the time to act.

Help us find a cure for Cystic Fibrosis!

Thank you!

Marc