2025 Update

Oliver continues to stay healthy on Trikafta and uses his vest daily. (This machine performs the chest physical therapy that is needed to loosen the mucus in his lungs.)  He goes to his CF doctor twice a year for check ups which include blood work, pulmonary function tests and meetings with child life specialists. After his visit in July, we went to the NYPL where he got to see George Washington's Farewell Address. (Picture above.)

Once again we are so grateful that our insurance covered the majority of the cost of the medical equipment and his over $300,000 a year medication affordable.  The money raised goes to researching new medications and helping families afford treatment.

Since Oliver turned 9 this year we have a goal of $900.  We are continuing our goal to match his age every year!