Marc’s Trotters is excited for its New York Teams and Massachusetts teams to participate in this year’s Great Strides Walk! We’ve been putting in miles since Marc was diagnosed with Cystic Fibrosis in 2013.

Marc is a wonderfully energetic 13-year-old, and thanks to our supportive family, the NYU Langone Cystic Fibrosis Center team, and Trikafta, a CFTR modulator, he’s healthy and growing. Marc’s a skilled swimmer, plays basketball, produces short films, and is a talented musician, playing piano and singing. He has 5 musicals and a dozen recitals under his belt, and more to come this June.

Even with Trikafta, Marc still needs to continue his twice-daily treatments (nebulizers and chest compression therapy), take pancreatic enzymes before he eats foods with fat and proteins, and see his CF team at least quarterly.

We fully support the Great Strides Walk and the CF Foundation in our combined mission to cure Cystic Fibrosis. While progress, such as improved CFTR modulators and treatment options, have helped some CF fighters, too many are still struggling with the effects of CF.

We are grateful for the progress that has been made, and we will not stop until we achieve our ultimate goal, which is a cure. To achieve this goal, more research is essential, requiring a very substantial investment. Even after a cure is found, customized care will be needed for generations to treat long-lasting health problems, making continued donor support vital. Fundraising is critical to advance our mission, and now is the time to act.

Help us find a cure for Cystic Fibrosis!

Thank you!