I'm a healthy, strong, skilled, energetic 13-year-old, and thanks to my supportive family, the NYU Langone Cystic Fibrosis Center team, and Trikafta, a CFTR modulator, I'm thriving! I'm a skilled swimmer, I love to play basketball and love making three pointers like Stephen Curry. I like to produce short films and I'm a talented musician, playing piano and singing. I have been in 5 musicals and I have over a dozen recitals under my belt! This year I'm Private the Penguin in the Madagasacar Jr. musical at my school. I will perform Follow The River from the broadway musical Hells Kitchen at my next vocal recital, and I will preform I Lived by One Republic at my next piano recital.

Even with Trikafta, I still need to continue my twice-daily treatments (nebulizers and chest compression therapy), take pancreatic enzymes before I eat foods with fat and proteins, and see my CF team at least quarterly.

I  fully support the Great Strides Walk and the CF Foundation in our combined mission to cure Cystic Fibrosis. While progress, such as improved CFTR modulators and treatment options, have helped some CF fighters, like me, too many are still struggling with the effects of CF.

I  am very grateful for the progress that has been made, and my family will not stop until we achieve our ultimate goal, which is a cure. 

Help us find a cure for Cystic Fibrosis!

Thank you!

Marc