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My Great Strides Story

Erin Rubin

Fundraising for New York 5 Borough Great Strides 2026

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Erin Rubin

206 Update

Oliver continues to stay healthy on Trikafta and uses his vest daily. (This machine performs the chest physical therapy that is needed to loosen the mucus in his lungs.)  He goes to his CF doctor twice a year for check ups which include blood work, pulmonary function tests and meetings with child life specialists. This year he started getting liver function tests to make sure the medication was not causing any damage. 

Once again we are so grateful that our insurance covered the majority of the cost of the medical equipment and his nearly $400,000 a year medication affordable.  The money raised goes to researching new medications and helping families afford treatment.

Since Oliver turned 10 this year we have a goal of $1000.  We are continuing our goal to match his age every year! 

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$148
raised of $100 goal
 

Achievements

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Team Oliver's Army

$15,283.70
$1,000

Recent Donations

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.