

My Great Strides Story
Fundraising for New York 5 Borough Great Strides 2026
Erin Rubin
206 Update
Oliver continues to stay healthy on Trikafta and uses his vest daily. (This machine performs the chest physical therapy that is needed to loosen the mucus in his lungs.) He goes to his CF doctor twice a year for check ups which include blood work, pulmonary function tests and meetings with child life specialists. This year he started getting liver function tests to make sure the medication was not causing any damage.
Once again we are so grateful that our insurance covered the majority of the cost of the medical equipment and his nearly $400,000 a year medication affordable. The money raised goes to researching new medications and helping families afford treatment.
Since Oliver turned 10 this year we have a goal of $1000. We are continuing our goal to match his age every year!







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