Alexandria was born in 1988; she was diagnosed with Cystic Fibrosis (CF) and had surgery when she was 4 days old.  After time in the Neonatal Intensive Care Unit at Children’s Hospital Boston, she came home with a feeding tube.  In 1989, the gene for CF was discovered. 

Thanks to the CF Foundation and donors such as yourself, Alex is now 37 years old and is thriving.  She has been married to Matthew for 13 years and works on a part-time basis for the National Park Service.

In order to stay healthy:
Trikafta has been a miracle drug for patients who have the most popular genetic mutation,  F508del.  However, Alex has a rare mutation, also known as a nonsense mutation.  Please help to fund the research to find the drug that will help patients such as Alex.