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My Great Strides Story

Laurie Katz

Fundraising for Nassau County Great Strides

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Laurie Katz

Thirty four years ago, my daughter was born and all was wonderful. Almost three years later, she was diagnosed with Cystic Fibrosis and my world crumbled. I was 7 months pregnant with my second child and my world was coming apart. My son was diagnosed at 11 days old and our journey into the CF world began.

My daughter Enid remained relatively healthy through her childhood, but my son , Jeremy, was ill very often. He always bounced back, but I could tell this illness was taking a toll. Spring ahead 21 years later and my son found himself fighting for his life. Nine days after his 21st birthday, my son, my angel, left this world for a different existence and my heart shattered. 

The care for Cystic Fibrosis patients has come far in these almost eleven years since Jeremyś passing. For 90% of the CF patients, there are miracle drugs, which, though do not produce a cure, keep patients relatively stable until a cure is eventually found.

My kids are both in the dreaded 10% , with a mutation which doesn´t yet respond to any of the miracle drugs.

It is too late for my son Jeremy, but my daughter is here fighting, and at 34 years old  she is fighting this battle for two, as she promised her brother.
What we need is to push ahead with more research, but research costs money. Please help me give my daughter the future my son was denied and make a donation to the Cystic Fibrosis Foundation today. Thank you from this mothers heart.

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$1,000
raised of $1,500 goal
 

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$1,000
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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.