My Great Strides Story
Jeff Erickson
Jeff Erickson
A message of HOPE from Bellamy's Mama!
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
My little hero
I’m pretty loud about the fact that my son Bellamy has Cystic Fibrosis. When he was born, and I received his diagnosis, I had to mentally grapple with the fact that my newborn baby may not live to see his thirties. However, when we started our journey at Childrens Nebraska Hospital, our team told us that his life would be different. A disease that once had a life expectancy of less than 10 years old now could be treated by a class of drugs called modulators. Bellamy started his first modulator called Orkambi a few weeks after his first birthday. A little bit after his second birthday he took his first dose of Trikafta. Trikafta has been hailed as a miracle in the CF community. This drug is something I have clung to, and it has given me hope that my son will outlive me. It is a strong medication, with serious side effects, and we are currently at half the recommended dose until we know how it will affect him. I’m not sure if this will be Bellamy’s miracle, but we hope and pray that it is. Today and everyday we choose hope
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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