Hi everyone 💜

I’m sharing something that’s become very close to our hearts and asking for your support.

Our daughter, Paisley, was diagnosed at birth with a mild form of cystic fibrosis called CRMS. 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.

From the very beginning, we’ve been incredibly fortunate to have an amazing team at Children’s Nebraska guiding us and taking such great care of her. What could have been a very scary and overwhelming diagnosis has felt much more manageable because of their support.

We also know just how lucky we are. Paisley is doing well, and we’re constantly reminded that many individuals living with cystic fibrosis face daily challenges, uncertainty, and significant medical needs.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

That’s why this fundraiser means so much to us. Cystic fibrosis has become near and dear to our hearts, and we want to do what we can to support research, care, and families navigating this journey.

If you’re able to donate or share, it would mean the world to our family. Every bit truly makes a difference 💜