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Harry’s Heroes

Fundraising for New Canaan Great Strides

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Harry’s Heroes

Join Us in the Fight Against Cystic Fibrosis for Harry


At two weeks old, our beautiful boy, Harry, tested positive with Cystic Fibrosis. There's nothing that can prepare you for the news that your child has been diagnosed with a severe illness. Though we were heartbroken, we knew Harry needed us. So, we dedicated ourselves to understanding CF and becoming medical Mom and Dad to deliver the best care for his daily treatments and medications.


CF is a genetic, life-shortening disease that affects the lungs, pancreas, and other vital organs, making it difficult to breathe and fight life-threatening infections. Each individual with CF experiences this challenging disease differently, and while advancements have been made, many still face immense obstacles.


We are grateful that Harry will qualify for modulator therapies when he turns two, offering him a better quality of life. However, many others are not as fortunate, which is why our fundraiser is so crucial. We aim to support research that can provide effective treatments for those who do not qualify for modulator therapies and ultimately find a cure for Cystic Fibrosis.


There is currently no cure for CF, but we believe that during Harry's lifetime, we can make significant strides towards one. Our deepest hope is to see Harry cured while he is still a child, ensuring he has the same opportunities in life as his peers.


Thank you for your generosity, love, support, and, above all, your prayers. Together, we can make a difference in the fight against Cystic Fibrosis and give our son a long healthy fulfilled life!


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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.