Harry’s Heroes
My husband Matt and I are walking for our son, Harry.
We found out while I was pregnant that there was a 25% chance that our son would test positive for Cystic Fibrosis after Matt and I both tested positive as carriers for the gene during genetic testing. We spent the rest of my pregnancy remaining hopeful that our son would be healthy and safe.
At two weeks old, Harry tested positive for Cystic Fibrosis. There is absolutely nothing that can prepare you to find out that your child has been diagnosed with a terminal illness. We were heartbroken, but knew that Harry needed his parents to tackle this with him, so we got to work on understanding everything in and out about CF and how to be the best caregivers to our son with his daily treatments and medications.
Our life's mission is to do anything we possibly can to find a cure for our son and so many of those affected by Cystic Fibrosis.
Harry is a beautiful, smiley and sweet boy. Being his parents is the privilege of a lifetime.
Matt and I are so grateful to his team of doctors at Hartford Children's Hospital and especially our family and closest friends who have been our pillars of strength for us. Harry has no idea how much he is loved and supported, but we do.
"CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life."
Will you help us end cystic fibrosis?
By donating to our fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward \u2013 a cure for everyone with CF.
Thank you so much for your generosity and love and support. If you can do anything today, please pray for our son and all of those affected by Cystic Fibrosis that a cure is found.
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