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My Great Strides Story

Sarah Baronas

Fundraising for South Coast Great Strides

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Sarah Baronas

Hi 
My name is Sarah and I was diagnosed with Cystic Fibrosis at birth. I have a great team of doctors at Boston Childrens Hospital in Boston. I get check ups every three months where they test and treat me. I'm a freshman in high school and have normal days like every other kid. Many people don't even know I have CF until I tell them. I run track in the Winter and Spring, at first I had some trouble breathing and congestion. I've improved in my running a lot and my breathing doesn't bother me anymore. I also enjoy going to the beach with my best friend Natalie and having lots of sleepovers. All the donations made to CF have provided the funds needed for research and medication like Trikafta. It's a medication I've been taking. It helps prevent lung infections and helps reduce the mucus build up. I also take enzymes to help digest food at every meal. I hope with these fundraisers I can live a long life like any other kid. 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  


Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$1,370
raised of $1,000 goal
 

Achievements

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Team Smiles for Sarah

$1,570
$3,500

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.