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Our Xtreme Hike Story

Johnie Ferro
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Johnie Ferro

This August, Johnie and Eric will hike over 20 miles through Mt. Hood National Forest in the CFF Xtreme Hike Challenge. 

Cystic fibrosis became an undeniable part of their lives in 2013 when Rylee was diagnosed at just two weeks old. Two years later, Johnie also learned she has CF, though her case is much milder. Over the years they have both fought, especially Rylee. She has spent more than 100 nights in the hospital, taken countless medications, and never misses a breathing treatment.

In 11 years, the family has seen incredible progress. Life expectancy has nearly doubled, and new treatments have given them hope. But CF remains a relentless disease with no cure, and too many people are still waiting for life-changing treatments.

That’s why Johnie and Eric hike. That's why they fight!

They need support to fund critical research so that one day, every person with CF can live without hospital stays, pills, and fear.

Please donate today so Johnie, Rylee and the rest of the world can live without cystic fibrosis.

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$3,450
raised of $3,590 goal
 

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Team Running4Rylee

$7,575
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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.