Jamie Michels
Hello! I am a mother of a child who has Cystic Fibrosis, Ellie.
Within 24 hours of Ellie being born she had to have meconium ilius surgery. We had no idea what CF was or that it was a possibility until they were in the middle of her surgery when they realized that was a high possibility that she has CF and they told us. She was in the NICU for 16 days post op until we got to go home and start this scary journey. We went to Doernbeckers for her first of many CF clinics and were greated by such a wonderful, positive and caring team that we still see today, though some have retired.
Since Ellie's diagnosis I have worked hard to keep her as healthy as I can and she has only been hospitalized twice in 9 years which is a feat in itself. Ellie takes about 33 pills a day and does a minimum of 1 hour of respiratory treatment per day.
Apart of the hard work is fundraising and raising awareness which leads to events like this one.
There is currently no cure for cystic fibrosis and though we have made great progress, people still die from this horrible disease. I'm hiking to help change that reality.
For those who don't know, CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Within 24 hours of Ellie being born she had to have meconium ilius surgery. We had no idea what CF was or that it was a possibility until they were in the middle of her surgery when they realized that was a high possibility that she has CF and they told us. She was in the NICU for 16 days post op until we got to go home and start this scary journey. We went to Doernbeckers for her first of many CF clinics and were greated by such a wonderful, positive and caring team that we still see today, though some have retired.
Since Ellie's diagnosis I have worked hard to keep her as healthy as I can and she has only been hospitalized twice in 9 years which is a feat in itself. Ellie takes about 33 pills a day and does a minimum of 1 hour of respiratory treatment per day.
Apart of the hard work is fundraising and raising awareness which leads to events like this one.
There is currently no cure for cystic fibrosis and though we have made great progress, people still die from this horrible disease. I'm hiking to help change that reality.
For those who don't know, CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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