My Great Strides Story
Amy And Greg Lupica
Fundraising for Pawtucket Great Strides
Amy and Greg Lupica
Dear Family and Friends,
We hope this letter finds you all happy and healthy! We are once again gearing up for the Great Strides Walk to Cure Cystic Fibrosis. While we continue to dream of a cure, we are so grateful for the progress the CF Foundation has made thus far to extend the lives of those with CF and their commitment and innovation to finding a cure.
We were fortunate to be able to attend the North American Cystic Fibrosis Conference held in Boston this past year. We learned so much about the current research. It was old home week for us! While the conference was huge, we were able to see all of Will’s doctors since he was 2 and meet his wonderful current New York doctor! They have all been so important in our lives and we cherished the opportunity to let them know that!
We were very impressed with the Foundation’s forward-thinking approach. Now that the CF population is getting older (yahoo!), they are using resources to address new issues adults with CF are confronting and partnering with a variety of specialists to bring the best care to those with CF. We are also encouraged by the Foundation’s focus on those patients who don’t yet have or can’t tolerate a therapy like Trikafta. We are so lucky that Will benefits from this incredible medication and are excited that a newer version of this drug has now been approved. Our hearts go out to the families that are still waiting for a therapy for their loved ones. We are committed to continuing our efforts until all those with CF have a cure.
Will and Roxy are still living in Brooklyn and feel very much at home there – and now Will has easy access to spur of the moment Mets games! Janie and James welcomed Cleo Emerson Preiss into the world on July 25! What joy she has brought to all of us!!! After 35 years of teaching, Amy retired in June! She and Greg have been enjoying spending time with Cleo. Amy’s mom who moved to Providence in June, too. It’s been great having her nearby!
Our walk is Saturday, May 10 at 11:00 at Slater Park in Pawtucket. We would love for you to join us! You can register by clicking on the three lines in the upper right-hand corner and pressing the “Register” button. If you would like to make a donation push the “Donate” button. Please email us with any questions.
Your support has buoyed us throughout all these years! We have you to thank for the progress we have seen and are so grateful for your striding alongside us as we continue to work for a cure for all people with CF.
Sending all our love,
Amy and Greg
We hope this letter finds you all happy and healthy! We are once again gearing up for the Great Strides Walk to Cure Cystic Fibrosis. While we continue to dream of a cure, we are so grateful for the progress the CF Foundation has made thus far to extend the lives of those with CF and their commitment and innovation to finding a cure.
We were fortunate to be able to attend the North American Cystic Fibrosis Conference held in Boston this past year. We learned so much about the current research. It was old home week for us! While the conference was huge, we were able to see all of Will’s doctors since he was 2 and meet his wonderful current New York doctor! They have all been so important in our lives and we cherished the opportunity to let them know that!
We were very impressed with the Foundation’s forward-thinking approach. Now that the CF population is getting older (yahoo!), they are using resources to address new issues adults with CF are confronting and partnering with a variety of specialists to bring the best care to those with CF. We are also encouraged by the Foundation’s focus on those patients who don’t yet have or can’t tolerate a therapy like Trikafta. We are so lucky that Will benefits from this incredible medication and are excited that a newer version of this drug has now been approved. Our hearts go out to the families that are still waiting for a therapy for their loved ones. We are committed to continuing our efforts until all those with CF have a cure.
Will and Roxy are still living in Brooklyn and feel very much at home there – and now Will has easy access to spur of the moment Mets games! Janie and James welcomed Cleo Emerson Preiss into the world on July 25! What joy she has brought to all of us!!! After 35 years of teaching, Amy retired in June! She and Greg have been enjoying spending time with Cleo. Amy’s mom who moved to Providence in June, too. It’s been great having her nearby!
Our walk is Saturday, May 10 at 11:00 at Slater Park in Pawtucket. We would love for you to join us! You can register by clicking on the three lines in the upper right-hand corner and pressing the “Register” button. If you would like to make a donation push the “Donate” button. Please email us with any questions.
Your support has buoyed us throughout all these years! We have you to thank for the progress we have seen and are so grateful for your striding alongside us as we continue to work for a cure for all people with CF.
Sending all our love,
Amy and Greg
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