Welcome to Team Walking for Willy!

As a lot of you know, my little brother Will was diagnosed with cystic fibrosis when he was six months old. Ever since then we have been fighting against the disease to make sure that, in the future, he can breathe a little bit easier and feel a little bit better.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.As a CF sister, I have watched Will spend hours doing treatments, take a bunch of daily medications and make countless trips up to the hospital.

I feel so lucky to have walked in the Great Strides Walk-a-Thon for the past 27 years of my life, and I am excited to once again lead up a team of walkers and sponsors! I'm so grateful for all of the wonderful family and friends who have walked by my side or sent encouraging love to support the walk's success.

This team page allows you to sign up to walk in the Great Strides Walk-a-Thon on Saturday May 10th at Slater Park in Pawtucket to join us virtually to log our miles walking for a cure! I know that together, we are adding tomorrows to the lives of my brother, Willy, and so many people living with CF by supporting the search for a cure.

Love, Janie