My Great Strides Story
Barbara Milnes-Beam
Barbara Milnes-Beam
Peyton was only a few days old when she was diagnosed with CF through the newborn screening.
From only a few months old she was put on inhaler along with chest therapy and nebulizers twice daily, unless she gets sick then it is four times daily.
November 2021 Peyton was admitted into Chop hospital for two weeks due to her having pneumonia.
January 2022 Peyton had to add another medication to her daily routine Ivcacaftor (Kalydeco) this medication helps decrease the build up of mucous in the lungs.
Lets make CF stand for Cure Found
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
From only a few months old she was put on inhaler along with chest therapy and nebulizers twice daily, unless she gets sick then it is four times daily.
November 2021 Peyton was admitted into Chop hospital for two weeks due to her having pneumonia.
January 2022 Peyton had to add another medication to her daily routine Ivcacaftor (Kalydeco) this medication helps decrease the build up of mucous in the lungs.
Lets make CF stand for Cure Found
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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