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My Great Strides Story

Emily Apakian

Fundraising for Philadelphia Great Strides

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Emily Apakian

Hi! My name is Emily and I was diagnosed with cystic fibrosis a few weeks after I was born. I’ve learned to live with this disease through the support of my family, friends, and care team. While it certainly hasn’t been an easy journey, I’m thankful for all the experiences that has shaped me into the person I am today.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

There is currently no cure for cystic fibrosis and too many people with CF die young. The CF Foundation, with support from people like you, have made a massive impact. The Foundation has funded life-changing treatments, contributing to an increase in the median age of survival from 31 in 1997 (the year I was born) to 61 in 2025! The CFF has also brought the community together through virtual conferences and other events that allow individuals with CF to connect. CF can be an isolating disease because of the risk of cross-infection. 

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF. Thank you for supporting Emily’s Angels!

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$1,590
raised of $1,000 goal
 

Achievements

Leader

Team Emily’s Angels

$3,119.99
$2,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.