My Great Strides Story
Sharon Kelso
Fundraising for Philadelphia Great Strides 2026
Sharon Kelso
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
Cystic Fibrosis is an inherited life-threatening disorder that damages the lungs and digestive system.
Cystic Fibrosis is an inherited life-threatening disorder that damages the lungs and digestive system.
Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways.
Symptoms vary and can include cough, repeated lung infections, inability to gain weight, and fatty stools.
Treatments may ease symptoms and reduce complications. Newborn screening helps with early diagnosis.
Our warrior was diagnosed with CF by newborn screening results. He has one deltaF508 and three rare (cf) genes. When I say “rare genes” they are cf genes that might get read over because they are not common in the cf data,or they are newly symptomatic genes. Only 1/3 rare genes are active. He is a very active young boy who loves theatre and sports. His daily routine involves breathing treatments,vitamins, enzymes supplements, vest,and a lot of physical therapy to break up mucus. We are grateful that our symptoms are more mild than other cases may be. We pray for those who are fighting and for those who lost the fight. 💛Join our team today! 💜 We will continue to spread awareness for CF, Build Hope and Pray that one day CF stands for CURE FOUND!
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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