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For My Nieces

Trinity Kane
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Trinity Kane

My nieces Lily and Mackenna have cystic fibrosis. Lily was diagnosed while in utero. Her first week was a tough one, ending up in the NICU due to a bowel obstruction which required irrigation and gradual progression back to feeding. Since then she has been nothing but a rock star and beautiful inspiration to all that she meets. She has to take meds multiple times daily along with chest percussion and breathing treatments, but she is the happiest little girl...most of the time. She's had her fair share of illness including 1 trip to the PICU at 1 year old and another hospitalization at 2, but she has overcome every obstacle set in front of her. Now her baby sister has joined her in this fight. It breaks our hearts every time they get sick and our mission is to do everything in our power to make the road ahead of them smoother. The CF foundation has given us so much hope for their futures with all of the advancements that have been made with treatments and medication. Our goal is to help this organization raise as much money as possible to help the nearly 40,000 people in the United States with cystic fibrosis. 

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$185
raised of $350 goal
 

Achievements

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Team Lily Love & Mighty Mack

$1,995
$3,500

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.