My Great Strides Story

Our daughters Lily and Mackenna were diagnosed with cystic fibrosis. Lily was diagnosed while in utero. Her first week was a tough one, ending up in the NICU due to a bowel obstruction which required irrigation and gradual progression back to feeding. Since then she has been nothing but a rock star and beautiful inspiration to all that she meets. She has to take meds multiple times daily along with chest PT and breathing treatments, but she is the happiest little girl…most of the time. She’s had her fair share of illness especially during her 1st year of life including 1 trip to the PICU so far, but she has overcome every obstacle set in front of her. Now her baby sister has joined her in this fight. It breaks our hearts every time they get sick and our mission is to do everything in our power to make the road ahead of them smoother. The CF foundation has given us so much hope for our little girls’ futures with all of the advancements that have been made with treatments and medication. Our goal is to help this organization raise as much money as possible to help the nearly 40,000 people in the United States with cystic fibrosis.

CF is a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF; yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.