My Great Strides Story
Kayleigh Santichen
Fundraising for Pittsburgh Great Strides
Kayleigh Santichen
My Great Strides Story
As most of you know, my twins, Lucia and Palmer were diagnosed with CF at birth. After some research we found out that there are only 12 people in the USA walking around with this rare form of CF and I am lucky enough to be the mother of 2 of them! Lucia and Palmer are just about to turn 4 and are doing great! Spending time with them, you would never know that they have CF- they are so fun, loving, and full of energy!
Lucia was hospitalized twice in 2024, once in May for 14 days of iv antibiotic therapy and once in October for 14 days where she needed iv antibiotic therapy and an embolization of bleeding blood vessels in her lung. January 1, 2025, Lucia's lung started bleeding again so she was taken the Children's Hospital and ultimately had the upper right lobe of her lung removed. She has recovered well from surgery and is slowly becoming more and more like herself again. Luckily, Palmer has avoided the hospital in 2024 and so far in 2025 though has been on antibiotics frequently due to getting sick.
Please consider donating today to help us find a cure for their incredibly rare form of CF! Currently, they do not qualify for any modulators and treatments due to their rare variants. Every little bit counts!! My whole family thanks you and we truly appreciate you!
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress -- including fostering the development of more than a dozen CF treatments -- but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
As most of you know, my twins, Lucia and Palmer were diagnosed with CF at birth. After some research we found out that there are only 12 people in the USA walking around with this rare form of CF and I am lucky enough to be the mother of 2 of them! Lucia and Palmer are just about to turn 4 and are doing great! Spending time with them, you would never know that they have CF- they are so fun, loving, and full of energy!
Lucia was hospitalized twice in 2024, once in May for 14 days of iv antibiotic therapy and once in October for 14 days where she needed iv antibiotic therapy and an embolization of bleeding blood vessels in her lung. January 1, 2025, Lucia's lung started bleeding again so she was taken the Children's Hospital and ultimately had the upper right lobe of her lung removed. She has recovered well from surgery and is slowly becoming more and more like herself again. Luckily, Palmer has avoided the hospital in 2024 and so far in 2025 though has been on antibiotics frequently due to getting sick.
Please consider donating today to help us find a cure for their incredibly rare form of CF! Currently, they do not qualify for any modulators and treatments due to their rare variants. Every little bit counts!! My whole family thanks you and we truly appreciate you!
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress -- including fostering the development of more than a dozen CF treatments -- but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
Comments