Randi Sacco
Hi friends!
It's that time of year where I ask for your help and generosity.
As everyone probably knows, our sweet little buddy was diagnosed with CF as a newborn. CF is a progressive disease which primarily involves the lungs and GI tract. While there is no cure for this condition, there have been incredible treatment advances just within the last few years. I feel very fortunate that we got his diagnosis when he did and have been able to be very proactive with his medication plan.
While G has the most common type of CF and is thankfully able to take one of these life changing drugs, there are unfortunately a good number of CF patients who have rarer subtypes and do not qualify for these modulating drugs. With ongoing studies and advancements, I hope that will change and everyone will be able to qualify for these miracle treatments.
The Cystic Fibrosis Foundation is a nonprofit organization that is dedicated to funding research and breakthroughs in CF care. Without donations and their unwavering efforts, I can't imagine where we would be right now.
We are so thankful to those who have donated in the past, shared our cause, or even just learned a little more about CF because of baby G
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
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