Our Cystic Fibrosis Story
Jessica Nasse
Fundraising for Pittsburgh Great Strides 2026
Jessica Nasse
As most of you know, Andy was diagnosed with Cystic Fibrosis at the age of 6 months. At that time, his expected lifespan with this diagnosis was 10-12 years. However, because of the research funded by the Cystic Fibrosis Foundation, and his amazing care team at Nationwide Children’s Hospital, Andy will celebrate his 47th birthday in June!
When we were married in 2018, we were planning for a short marriage, while planning for Andy’s end of life care. Little did we know that Trikafta, a drug funded and discovered by the Cystic Fibrosis Foundation and Vertex Pharmaceuticals, would change our lives forever. Instead of planning a funeral, we’re planning trips across the world.
There is currently no cure for Cystic Fibrosis, and too many people with CF die young. This is why we also walk in memory of Andy’s brother, Peter. Peter lost his battle in 2013, and not a day goes by that we don’t think about him.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
By donating to our walk, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
When we were married in 2018, we were planning for a short marriage, while planning for Andy’s end of life care. Little did we know that Trikafta, a drug funded and discovered by the Cystic Fibrosis Foundation and Vertex Pharmaceuticals, would change our lives forever. Instead of planning a funeral, we’re planning trips across the world.
There is currently no cure for Cystic Fibrosis, and too many people with CF die young. This is why we also walk in memory of Andy’s brother, Peter. Peter lost his battle in 2013, and not a day goes by that we don’t think about him.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
By donating to our walk, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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