CF month is coming up in May. For those of you who may not know, my daughter Sydney has cystic fibrosis. She is doing fantastic, she’s so healthy…all because of the incredibly amazing advances in medication and technology. All because of the sheer luck of having the “right” CF genes. This makes her eligible for Trikafta, a life-changing medication that adds 50 YEARS to her life expectancy. A normal life expectancy for someone with CF?! Insane.

Her first 2 years of life weren’t easy by any means. Before Trikafta, we spent many days in a steamy bathroom trying to clear mucus and do chest PT. At one point she had pseudomonas, a serious lung infection that needed an inhaled antibiotic for an hour each day for 28 days. Now, she can get over any virus thrown at her in a normal timeframe and NO antibiotic needed. She never coughs. She went from dozens of pills per day, to just Trikafta twice a day.
 

But, there are still SO MANY CFers without Trikafta. Because of access, and also because it doesn’t work with their genes. So many waiting for a transplant and taking dozens of pills each day…
 

Sydney got her miracle. And luckily for her, before any irreversible damage was caused. I couldn’t imagine waiting and wondering if their miracle would ever come…
 

So, that’s why we’re still fighting. And we’ll keep pushing until no one is left behind. 💪🏼 all I’m asking is $5 (or more if you’re feeling generous😉) to go directly towards the CF foundation. For research towards a CURE.