First, thank you to everyone who has ever donated to CFF or otherwise supported our family over the past 31 years. We are beyond grateful.

Thanks to the innovation, persistence and hard work of the CF Foundation and Vertex, the FDA's approval of Trikafta in 2019 positively changed the trajectory of Katie's life. Prior to Trikafta, Katie's lung function was steadily declining and she was in what seemed like a never ending cycle of hospitalizations and at-home IV treatments, all while trying to complete her Doctorate of Psychology degree. While the side effects of Trikafta are  difficult for Katie and many others who are eligible to take the medication, she is eternally grateful for her improved and more stable lung function. 

Since Trikafta, Katie and Reed celebrated their third wedding anniversary. She also started her own psychological practice, Dr. Katie Lawliss, while doing her best to balance her health, family and two "doggos" as she calls them. We are hopeful that Katie may begin a new FDA approved CF modulator in March that will replace Trikafta, which may have less negative side effects. We will keep our fingers crossed.  

There is NO cure for CF, and not all people living with CF are currently eligible to take Trikafta or any other CF modulator as eligibility is based on each person's specific CF genes. We NEED to continue to ask for your support so Katie and others with CF can improve the quality of their lives and continue to look ahead. Thank you so much from my family to yours.

Will you join us?

Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.

To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.

By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!