My CF Cycle for Life Story
Patty Healy
Fundraising for Rhode Island CF Cycle for Life
Patty Healy
We are driven by a dream!
Getting ready to sit on the bike and “ride like the wind”;) once again in our quest for cures for CF.
Maggie has been doing fantastic – and we owe 99% of this amazing turnaround in her health to the life-saving therapy from Vertex Therapeutics called Trikafta…which Maggie took for the first time on December 6, 2019. It is crazy to think that we are coming up on the 6 year anniversary of her first dose… AND the last time she was hospitalized for a Cystic Fibrosis clean-out. We count our blessings daily and try not to take today’s good health for granted.
Today Maggie is in her Freshman year at URI’s School of Nursing. The THOUGHT of this alone is truly heart-warming – Maggie was introduced to so many outstanding folks in this field during her time at both UMASS Worcester and Hasbro Children’s Hospitals – but the truth is, she would NEVER have been a candidate to become one herself at the risk of exposure and danger to her own health. Incredibly grateful that she can pursue this dream – and at the foundation of this change and opportunity is YOU.
For well over 15 years many of YOU have supported the Cystic Fibrosis Foundation through these annual bike rides. The CF Foundation was a lead funding arm supporting the research & development that allowed Vertex to fast track their go-to-market process. The Foundation is also backing several budding pharmaceutical companies working on genetic therapies to help cure the population of CF patients whose bodies have rejected Trikafta and other CFTR modulators.
Until CF stands for “Cure Found” – we thank you from the bottom of our hearts!
- Team Maggie’s Milestones
Getting ready to sit on the bike and “ride like the wind”;) once again in our quest for cures for CF.
Maggie has been doing fantastic – and we owe 99% of this amazing turnaround in her health to the life-saving therapy from Vertex Therapeutics called Trikafta…which Maggie took for the first time on December 6, 2019. It is crazy to think that we are coming up on the 6 year anniversary of her first dose… AND the last time she was hospitalized for a Cystic Fibrosis clean-out. We count our blessings daily and try not to take today’s good health for granted.
Today Maggie is in her Freshman year at URI’s School of Nursing. The THOUGHT of this alone is truly heart-warming – Maggie was introduced to so many outstanding folks in this field during her time at both UMASS Worcester and Hasbro Children’s Hospitals – but the truth is, she would NEVER have been a candidate to become one herself at the risk of exposure and danger to her own health. Incredibly grateful that she can pursue this dream – and at the foundation of this change and opportunity is YOU.
For well over 15 years many of YOU have supported the Cystic Fibrosis Foundation through these annual bike rides. The CF Foundation was a lead funding arm supporting the research & development that allowed Vertex to fast track their go-to-market process. The Foundation is also backing several budding pharmaceutical companies working on genetic therapies to help cure the population of CF patients whose bodies have rejected Trikafta and other CFTR modulators.
Until CF stands for “Cure Found” – we thank you from the bottom of our hearts!
- Team Maggie’s Milestones
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