Donate to our team to Cure Cystic Fibrosis
Katie's KureFinders
Fundraising for Roanoke Great Strides
Katie's KureFinders
Thank you for considering a donation in the fight against cystic fibrosis!
The Cystic Fibrosis Foundation continues to invest heavily in research leading to new treatment options, with the ultimate goal of a cure. CF is a genetic, life-shortening disease that damages the lungs, pancreas, and other vital organs resulting in breathing and gastrointestinal complications, among other challenges. Persistent lung infections caused by the buildup of thick mucus often result in extensive, irreparable lung damage and often respiratory failure. Even after a cure is found, the need for customized care will continue for generations after to treat these long-lasting health issues. Therefore, research funded by donor support is and will continue to be necessary.
The Foundation’s steadfast commitment to vigorous research continues to result in the development of new, improved treatments with the latest one approved by the FDA at the end of December 2024! The new medicines often result in a higher quality of life for many living with the disease, me included! In late 2019, I started a modulator drug that works to correct the defective CFTR protein which helps balance the flow of salt and water in and out of the cells lining the lungs and other organs, resulting in thinner secretions that do not harbor as many bacteria. Since then, my lung function has stabilized and my cough, congestion and sinus issues have significantly subsided! Setbacks continue to occur but are generally much less frequent. These improvements are a direct result of ongoing research leading to new treatments for which I am incredibly grateful!
With supporters like you by our side, the CFF continues to lead the way in extraordinary medical and scientific progress. The median life expectancy has increased to 61 years for babies born with CF today! What was once identified as a childhood disease is now comprised of more adults (60% plus) than children! Today, more than 40,000 people are living with CF in the United States, an increase from 30,000 just a few years ago! Despite this progress, some people with CF are not able to benefit from existing therapies because of negative side effects, their disease is too advanced, or their specific mutations do not respond. Fundraising is critical to advance the Foundation’s mission of ensuring that all people with CF have effective treatments, and one day a cure.
The Cystic Fibrosis Foundation continues to invest heavily in research leading to new treatment options, with the ultimate goal of a cure. CF is a genetic, life-shortening disease that damages the lungs, pancreas, and other vital organs resulting in breathing and gastrointestinal complications, among other challenges. Persistent lung infections caused by the buildup of thick mucus often result in extensive, irreparable lung damage and often respiratory failure. Even after a cure is found, the need for customized care will continue for generations after to treat these long-lasting health issues. Therefore, research funded by donor support is and will continue to be necessary.
The Foundation’s steadfast commitment to vigorous research continues to result in the development of new, improved treatments with the latest one approved by the FDA at the end of December 2024! The new medicines often result in a higher quality of life for many living with the disease, me included! In late 2019, I started a modulator drug that works to correct the defective CFTR protein which helps balance the flow of salt and water in and out of the cells lining the lungs and other organs, resulting in thinner secretions that do not harbor as many bacteria. Since then, my lung function has stabilized and my cough, congestion and sinus issues have significantly subsided! Setbacks continue to occur but are generally much less frequent. These improvements are a direct result of ongoing research leading to new treatments for which I am incredibly grateful!
With supporters like you by our side, the CFF continues to lead the way in extraordinary medical and scientific progress. The median life expectancy has increased to 61 years for babies born with CF today! What was once identified as a childhood disease is now comprised of more adults (60% plus) than children! Today, more than 40,000 people are living with CF in the United States, an increase from 30,000 just a few years ago! Despite this progress, some people with CF are not able to benefit from existing therapies because of negative side effects, their disease is too advanced, or their specific mutations do not respond. Fundraising is critical to advance the Foundation’s mission of ensuring that all people with CF have effective treatments, and one day a cure.
Sincere appreciation,
Katie and Her KureFinders
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