We are grateful that Regan and Maren continue to be healthy! We’ve seen drastic improvements in their health over the past few years due to Trikafta, a CF modulator medicine. Trikafta, together with their regular respiratory treatments and enzymes, helps their lung functions remain high, growth to happen without the extra calories previously required, and makes their overall health awesome. They are thriving! 

But, Regan and Maren still live with a chronic condition that requires them to manage cystic fibrosis even as they lead active teenage lives. Playing trombone and trumpet, lacrosse and rock climbing, hikes and karate, singing, school, friends, and more - all are experienced full throttle with the extra responsibility of managing CF every day. 

Unfortunately, a new battle to navigate has presented itself recently that threatens the development of further treatments and our eventual, much dreamed of cure for Regan and Maren. The National Institutes of Health (NIH) provides critical funding for CF research. Regan and Maren would not be thriving as they are today without the support of the NIH. NIH funding helps keep labs running and is the lifeblood of the academic research that has led to all of the drugs that keep Regan and Maren healthy today. As funding gets pulled and specialists resign or get fired, development will slow down. We don't have the time to sit and wait while years of clinical expertise walk out the door and trials are stopped midstream. We need to continue this progress and learn more about CF and how to cure it.

Science is the reason Regan and Maren can clear their lungs.  

Science is the reason Regan and Maren can absorb nutrients from food. 

Science is the reason Regan and Maren don’t lay awake coughing at night anymore.

Science is the reason Regan and Maren are alive.

It is critical that science is funded. We are walking in Great Strides this year, as we do each year, in support of a cure. This year we ask for your donations to help continue the amazing work of brilliant scientists who give us hope for an even more promising future with cystic fibrosis. 

Thank you for your love and support of Regan, Maren, and our family!

With gratitude,

Sarah, Mike, Regan, and Maren