

My Great Strides Story
Fundraising for Sarasota Great Strides
Lyndsey Schoem
Thank you for visiting Ellie’s Endeavor and standing with our family. Our daughter, Eleanor (“Ellie”), was diagnosed with Cystic Fibrosis (CF) when she was just two weeks old. CF is a progressive genetic disease that causes the body to produce thick, sticky mucus, which can clog the lungs and make breathing and infections a daily concern. It also affects digestion by blocking the pancreas from delivering the enzymes needed to absorb nutrients, so Ellie takes pancreatic enzymes with every meal and snack and does daily lung therapy to help keep her lungs as healthy as possible. Unfortunately, hospital visits are a common occurrence with CF—Ellie already had a two-week stay earlier this year—but she is in great hands with her medical team and with the support of the Cystic Fibrosis Foundation.
The progress in CF care over the last several years has been extraordinary—certain CFTR modulators have been life-changing for about 90% of people with CF. But there’s still a long way to go for the remaining 10%, and we won’t stop until every person with CF has effective treatment and, ultimately, a cure. We are confident that with your support, it’s not a matter of if there will be a cure—it’s a matter of when.
We hope you can join us on Saturday, October 18th, as we come together to walk to a cure. Whether you walk with us, donate, or share our page, you’re helping give Ellie—and so many others—more healthy days, more play, and more possibilities. Thank you for being part of Ellie’s Endeavor.
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