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My Great Strides Story

Papa Dick & Gram-Gram Robin Stoddard

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Papa Dick & Gram-Gram Robin Stoddard

Our Cystic Fibrosis Story
We, Papa Dick and Gram-Gram Robin, are grandparents to our beautiful granddaughter Lily, who was born with cystic fibrosis. Lily is lovely. She is gifted, intelligent, creative, inquisitive, fun-loving, and has an exuberance for life and full-on giggles that are infectious. We love our time with Lily whether it be simple visits, going to the science center or aquarium, making pumpkin bread, freezer jam, bouquets, or holiday decorations, clothes shopping, restaurant outings, enjoying a movie, watching her perform Irish dance, or singing in the choir. We are so amazed and so very proud of her. Our hearts are full of love and gratitude that we are her grandparents.

Lily, guided by the devoted care of her mom, Kristin, and phenomenal medical team at Seattle Children’s Hospital, has been treated for CF since she was a wee baby. Starting in her toddler years, Lily has engaged in and taken on responsibilities of self-care required for managing her condition. In the early years while under our care, Lily could show us how to work her nebulizer machine - where to plug in the hoses, which buttons to push - and "oversee" the administration of medications. Mind you, Kristin, gave us detailed instructions beforehand.

Lily and Kristin monitor her health and navigate her medical needs persistently each day. They celebrate her achievements and work through the times when Lily is simply not in the mood to do so. They endure medical appointments and hospital stays which are part of Lily’s life.

We are part of Lily’s Dream Team because we know and value the importance of CF research in the effort to improve the lives of those who have this condition. Cystic Fibrosis causes thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. We look forward to the day when we can all celebrate the cure for this disease.

We are seeking your support because we know every dollar raised for CF research counts. We have watched our granddaughter Lily benefit from the advances of ongoing research and are forever grateful for all contributions.

Lily, we love you so much sweetie! 

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$2,065
raised of $2,000 goal
 

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Team Lily’s Dream Team

$3,720
$4,000

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.