Our Xtreme Hike Story
Alicia Gozycki
Fundraising for North Carolina Spring Xtreme Hike
Alicia Gozycki
Matt and I got involved with the Xtreme Hike to Cure Cystic Fibrosis after our niece, Cameron, was diagnosed with CF shortly after birth. Together we have completed 30.1 on the Appalachian Trail in 2023, and the Urban Hike in Charlotte after Hurricane Helene pivoted the team's plans in 2024. This spring, Matt will hit the trails for another 30.1 while I provide first aid support as a volunteer.
Our niece Cam is a fighter. At three years old, she has already endured more than many of us will in lifetime. However, she is also fortunate to have the CF mutation that allows her to be eligible for amazing CTFR modulators - which are a direct effect of the tireless efforts by the collaboration of Cystic Fibrosis Foundation with scientists and clinicians over the past decades.
While Cam is currently thriving while taking Trikafta, these modulators do not work for every person with CF. This is why we hike and continue to fundraise for the foundation - the money funds the science, and the ever-evolving science gets us closer to the cure for CF.
CF is a genetic disease that affects the lungs, pancreas, and other vital organs. Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, we need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Our niece Cam is a fighter. At three years old, she has already endured more than many of us will in lifetime. However, she is also fortunate to have the CF mutation that allows her to be eligible for amazing CTFR modulators - which are a direct effect of the tireless efforts by the collaboration of Cystic Fibrosis Foundation with scientists and clinicians over the past decades.
While Cam is currently thriving while taking Trikafta, these modulators do not work for every person with CF. This is why we hike and continue to fundraise for the foundation - the money funds the science, and the ever-evolving science gets us closer to the cure for CF.
CF is a genetic disease that affects the lungs, pancreas, and other vital organs. Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, we need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Comments