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My Xtreme Hike Story

Karen Lissy

Fundraising for North Carolina Spring Xtreme Hike

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Karen Lissy

There is currently no cure for cystic fibrosis (CF), and too many people with CF die young. Many are diagnosed during childhood, so young that they can’t pronounce the disease’s name. For that reason, it is also referred to as “65 Roses.”

My sister, Diana, and I have accepted the challenge to hike to help the CF community.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with CF is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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At the top of Wayah Bald with a blanket of clouds beneath us.

An early AM picture...

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My sister, Diana, & I at the Hike Finish. Yes, it rained and thunderstormed; yes, it was muddy; yes, it was tough, but certainly memorable and fun!

Sunrise Saturday AM from the Appalachian Trail

Team Gratitude & Grit at the start of our hike (4am Saturday)!

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$2,555
raised of $3,000 goal
 

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Team Gratitude and Grit

$9,175
$9,000

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Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.