


My Xtreme Hike Story
Shaun Cramer
Fundraising for North Carolina Spring Xtreme Hike
Shaun Cramer
Max is my 8 year old son and was diagnosed with Cystic Fibrosis shortly after birth. He is my motivation to be better every day. To watch him do his daily breathing and pulmonary treatments along with his medication regimen without complaint is inspiring. Max refuses to let CF define him! Together lets do this for Max and all the CF'ers out there!!
My first CF Xtreme Hike was with the STL Gateway Chapter in 2017. Max was 8 months old at that time and the experience was a physical and emotional rollercoaster. Since then I have hiked with the Wisconsin Chapter and this year I'm joining the North Carolina Chapter, where the Xtreme Hike concept began.
Hike 30 Miles in a day.......no big deal when you look through the eyes of someone living with Cystic Fibrosis.
Shaun - Proud CF Dad
The Foundation's employees, volunteers, and sponsors are an amazing Team of people that have true compassion for our CF community.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
My first CF Xtreme Hike was with the STL Gateway Chapter in 2017. Max was 8 months old at that time and the experience was a physical and emotional rollercoaster. Since then I have hiked with the Wisconsin Chapter and this year I'm joining the North Carolina Chapter, where the Xtreme Hike concept began.
Hike 30 Miles in a day.......no big deal when you look through the eyes of someone living with Cystic Fibrosis.
Shaun - Proud CF Dad
The Foundation's employees, volunteers, and sponsors are an amazing Team of people that have true compassion for our CF community.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
APR
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