Walk with our team to Cure Cystic Fibrosis
Scottie's Strollers
Fundraising for Stillwater Great Strides 2026
Scottie's Strollers
At just a week and a half old our baby boy, Scott was diagnosed with cystic fibrosis through his newborn screen and confirmed with a sweat test. CF is a rare genetic disease caused by a defective gene that produces thick, sticky mucus in the lungs, pancreas and other organs. In the lungs, mucus clogs airways and traps bacteria, leading to infections, lung damage and respiratory failure.
Due to CF Scott is pancreatic insufficient, mucus builds up in the pancreas and prevents the release of enzymes to digest food leading to malabsorption of nutrients. Before every feeding he takes enzyme pills (obviously a baby can’t take a pill) so we have to open the pill capsules onto a spoon with some applesauce so he can get the medicine he needs to help absorb the nutrients. Additionally, patients with CF lose salt in their sweat due to the CFTR protein failing to reabsorb sodium chloride in sweat ducts, so we add additional salt to his bottles. He also takes a daily multivitamin.
To help break up mucus in his lungs we do lung therapy twice a day where we pat his chest with a cup device. When he turns 6 months old, Scott will get a vibrating vest that he will wear twice a day.
Despite his diagnosis, Scott is still just a normal happy and healthy baby! We do our best to avoid illnesses that could lead to him having to be hospitalized with a lung infection. We’re hoping when Scott turns 1 this October, he’ll be able to start a modulator. A modulator is a treatment for CF designed to correct the malfunctioning protein made by the CFTR gene. This treatment will hopefully let Scott live a long and normal life just like any other person.
In the United States there’s close to 40,000 people living with CF. In the 1950s a child with CF rarely lived long enough to attend elementary school, just 20 years ago the life expectancy was 30, but today a baby born with CF has a life expectancy of 67, which will continue to rise with the advancements of research and treatments.
The mission of the Cystic Fibrosis Foundation is to cure CF and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Due to CF Scott is pancreatic insufficient, mucus builds up in the pancreas and prevents the release of enzymes to digest food leading to malabsorption of nutrients. Before every feeding he takes enzyme pills (obviously a baby can’t take a pill) so we have to open the pill capsules onto a spoon with some applesauce so he can get the medicine he needs to help absorb the nutrients. Additionally, patients with CF lose salt in their sweat due to the CFTR protein failing to reabsorb sodium chloride in sweat ducts, so we add additional salt to his bottles. He also takes a daily multivitamin.
To help break up mucus in his lungs we do lung therapy twice a day where we pat his chest with a cup device. When he turns 6 months old, Scott will get a vibrating vest that he will wear twice a day.
Despite his diagnosis, Scott is still just a normal happy and healthy baby! We do our best to avoid illnesses that could lead to him having to be hospitalized with a lung infection. We’re hoping when Scott turns 1 this October, he’ll be able to start a modulator. A modulator is a treatment for CF designed to correct the malfunctioning protein made by the CFTR gene. This treatment will hopefully let Scott live a long and normal life just like any other person.
In the United States there’s close to 40,000 people living with CF. In the 1950s a child with CF rarely lived long enough to attend elementary school, just 20 years ago the life expectancy was 30, but today a baby born with CF has a life expectancy of 67, which will continue to rise with the advancements of research and treatments.
The mission of the Cystic Fibrosis Foundation is to cure CF and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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